Six-year-old Ben suffers from a rare condition called IPEX syndrome and has to spend a huge amount of time in hospital. In 2009, for instance, he only spent a total of 19 weeks at home. Although Ben just wants to be “like all the other boys and girls”, his immunity is so low that this can rarely happen.
His Starlight wish was to get our of the hospital and visit Disneyland with his family to meet all his favourite characters.
“What can I say apart from THE BIGGEST THANK YOU EVER!” said Mum, Tanya. “We cannot put into words how precious and lovely the trip was for us all. A million thank yous!”