Leeds Children’s Hospital recognised in our first Starlight Innovation Awards in two categories

Health play specialist Tracey Martin has been selected as the winner in Starlight’s first Innovation Awards for pioneering work tackling hospital-based anxiety in children and the hospital's young people and children’s diabetes service is one of our three runners-up for its work supporting under 7s with diabetes and their families.

Tracey Martin was selected for designing and creating a VIP PASS (Very Important Plan Procedural Anxiety Support Scheme) for children and young people with severe and complex procedural anxiety to help staff understand that they may need adjustments to help them cooperate with treatments such as blood tests and injections.

 She had been writing personalised plans for anxious young patients which parents or carers could show to staff with varying levels of success, so she came up with the idea of a ‘pass’ which was rolled out last year. 

The pass can be worn on a lanyard (see patient Imogen pictured below) and has a QR code which can be scanned by health staff. It gives them instant information about how the personalised plans work so when they read the paper copy they will understand more about why it is so important to make the individual child more comfortable during procedures. This is supported by play-based sessions to help young patients work through their fears and create their individual procedural plan.

The pass, which was funded by the hospital charity, is also linked to an alert system on patient records which ensures every health professional knows if their patient has a personalised plan which needs to be read before starting treatment. 

Tracey, who is based in the Paediatric Psychology Department, was delighted to be selected as the winner. She said: “Patients who have play sessions with a health play specialist or psychologist often make excellent progress, but it only takes one negative procedural experience to undo all the patient’s trust and ability to cooperate in the future.

“Patients are more likely to cooperate when they feel safe, listened to and understood. With the VIP Pass patients have the reassurance that their needs will be incorporated into their care and many have been able to have essential treatments which they had been refusing.

“It reduces unsuccessful attempts of procedures, but most importantly it reduces the risk of potential further trauma for a chronically ill patient.”

Case Study VIP PASS
Tracey described how she was asked to see a 13-year-old with severe procedural anxiety who needed a blood test to check her rheumatology condition but had been refusing for over a year and was in a lot of pain. After plenty of sessions playing at blood tests, she agreed to have one if she could have it at home cuddling her dog. A plan was written for community nurses to follow. It was very specific – no mention of needles, blood or veins but she wanted to know what stage she was at in the procedure with specific phrases she could cope with.

The clinicians were made aware of her plan through the VIP Pass and followed the plan for her care. Following the successful blood test she also went on to have an IV infusion in hospital without her dog present and she used the pass to have a vaccination at another trust. “As the patient did not live in Leeds, this was one of a few examples so far of VIP PASSes being successfully used in other trusts,” said Tracey.

Dinky-betes, runner-up

The hospital’s specialist diabetes service for under 7s called Dinky-betes was selected as one of our three runners-up (some of the team are pictured here with Erin and her parents who attend). 

The service, funded by patient crowdfunding, family donations and a charity, was created to boost peer support for younger children and their families and integrates play into appointments to increase understanding and reduce fear. It even serves up carb-counted snacks to help children navigate food with their condition. 

Tracey Stephenson, Consultant in Paediatric Diabetes at the hospital, who leads the service (pictured second left), said: “There are many challenges to navigating diabetes in very young children and variable blood glucose levels can have a detrimental impact on brain development and increase the risk of long-term complications such as blindness, kidney and heart disease. It is particularly difficult to regulate blood glucose levels in this age group because of more unpredictable eating patterns so they need to wear continuous glucose monitoring devices and insulin pumps which can make children very anxious and fearful as they need to be changed regularly.

Tracey added that after 12 months in Dinky-betes, 57% of children diagnosed for longer than one year upon entry into the clinic had seen an improvement in their diabetes overall.

Case study
Dinky-betes
Tracey described how a six-year-old boy (Brandon – pictured left) who was diagnosed with Type 1 diabetes aged one and had his insulin regulated by a pump for several years was reluctant to have it moved to a different skin site even though it was not keeping his glucose levels consistent. However, he agreed to have his pump relocated to a better position after seeing another child of a similar age (Tahla – pictured with Brandon on his right) within the Dinky-betes clinic with the same pump wearing it in the recommended place who told him it didn’t hurt to have there. This relocation has had a positive impact on his blood glucose levels.

Tracey said: “This is a beautiful example of the power of children normalising and sharing their experiences and supporting one another. Children genuinely love coming to Dinky-betes and enjoy spending time with their 'diabetes friends.”

Laura Whelan, Head of Nursing at Leeds Children’s Hospital, said:

‘We’re absolutely delighted that two of our play-based initiatives have been recognised by Starlight. Supporting children and young people to engage positively with their treatment is so important and our Play Team in Leeds are really leading the way in this field. I’m very proud of all our Play Leaders and Health Play Specialists and grateful to Starlight for their ongoing support and this amazing recognition.’

Cathy Gilman, Chief Executive of Starlight, said:

“We love the VIP Pass innovation - it makes children heroes in their own healthcare story, enabling them to feel understood and to build trust with the many healthcare professionals they may come into contact with. The improved co-operation with treatment that results from a less stressful experience, means the pass has been willingly embraced by healthcare professionals too! This once again demonstrates the benefits of putting play at the heart of healthcare.

"We’re also inspired by the Dinky-betes diabetes clinic which enables children to share their experiences and learn from each other. A diagnosis of diabetes can be isolating and frightening for parents too. The clinic also allows parents to support each other, alleviating stress for the whole family and really demonstrates the need for more play-centric clinics for children and their families! "