“Starlight are an incredible charity, and we are very lucky to have them in Ava’s life.”
In 2015, we granted Ava, who suffers from a very rare degenerative condition called Brown Vialetto Van Laere syndrome, “the most exciting wish of meeting her heroine Aurora at Disneyland”, explains her mum, Laura.
“This wouldn’t have been achievable without Starlight’s kindness and it was truly the holiday of her dreams. Since then, we have been blessed with other wonderful opportunities and amazing support. Which, especially through the covid period, was utterly indispensable with crafting packs and art sessions.”
It’s allowed Ava to “express herself and to reduce the isolation of being at home for large swathes of time.”