When Lucienne was just 5 months old, she was diagnosed with Agenesis of the Corpus Callosum (ACC) a condition that means the main bridge between the two halves of her brain is absent. Two years later, Lucienne was further diagnosed with 3q13.31 deletion syndrome. This condition was first identified as a syndrome in 2012 and is still emerging, with only a handful of diagnosed cases.
Because of these two conditions, Lucienne’s development is globally affected, with immature gross motor skills, learning difficulties, and a myriad of associated manifestations.
But despite all the many everyday challenge Lucienne faces, she remains a positive and enthusiastic child.
Lucienne and her family first came to Starlight through a Wish that helped develop her confidence in numerous ways.
When the Covid-19 Pandemic and its ensuing lockdowns began, Lucienne and her family started taking extra cautions because of Lucienne’s vulnerability. The introduction of Starlight’s virtual parties were so welcome and incredibly beneficial to Lucienne.